4/14/07

Two Stories of Undercutting Autism Support in South Carolina and Canada

There are two sides of every story and none that will benefit the best of autistic children the way I had when I was a kid.

The First story is a disturbing trend that is seen in most U.S. School Districts to offer special treatment and therapies for Autistic Children. Throughout South Carolina, several school districts need money from a $1.4 million shortfall in federal funds to provide services to Autistic Children.

See the story from The Aiken Standard (Aiken, South Carolina) or WISI 10 (Columbia, South Carolina).

The funds to care for autistic children at South Carolina are about to run out in June. They're seeking to find $1.4 million dollars that isn't readily available for them because Medicaid cut the funding for those services.

Amongst one of those services was Applied Behavioral Analysis. I did go through ABA or some aspects of it from kindergarten to first grade with my kindergarten teacher Ms. Entin (now Mrs. Blumethal, that lovely lady on my profile pic next to me at age five being interviewed by McCloud at a Save Autistic Children Telethon) from Leapwood Elementary School. ABA has worked for me in my early developments. I didn't get chained to a table if I didn't learn how to brush my teeth. Most of my early ABA treatments if i remember were rewarding phonetic sounds and geography lessons and stuff. After my kindergarten and first grade years, In my third and fourth grade, I went through Aphasia Speech and English Development with other students ranging from the fourth to sixth grade by my teacher, Mrs. Izumi at Annalee Elementary School. Aphasia is the loss of developing language due to brain damage. In my case, It was used to help me develop my speaking and language construction habits. Sometimes this can apply to autistic children to develop. Both of these developmental therapy sessions were helpful to me at a young age.

Mrs. Izumi had one of the greatest quotes that stuck in my head til the day I die: "Master The English".

The situation at South Carolina of funding shortfalls could be offsetted by fundraisers from other local Autism Groups. If AutismSpeaks would shift their fundraising priorities from trying to find a "cure" to actually helping the kids now with monies to help Autistic and Developmental Children, these kids wouldn't feel lost about having autism and their parents wouldn't have more to worry about for their autistic kid. There's a lot of other factors that complicate it such as taxpayer groups who demand a "reasonable" funding ratio of special education classes to mainstream classes by budgets and student to teacher ratios to combat school overcrowding. The public not wanting to pay higher taxes. The list goes on that goes nowhere. However, At least in South Carolina, $1.4 million could be raised in other ways and every penny counts to help these kids develop in their first 12 years. ABA to Aphasia to mainstream acceptance is not a quick fix, it varies, and it can help most autistic children become functionable in society.

Many of these parents can't afford a private therapy session for their autistic child. For many that aren't in the top 20% of the disposable income level of South Carolina, cutting autistic funding would be devastating for the progress of their child and if they have to take matters in their own hands, it would more likely involve moving to an another state, similar therapy at a lesser cost, or home schooling without the theraputic benefits.

I feel sad at what's going on at South Carolina, but that scenario may seem to resolve itself with private fundraising (which I'd be happy to support, btw) than what's happened in Canada Recently.

This is the headline for the second story of my post that just says it all:

Supreme Court won't hear Ontario families' appeal on autism funding

See the story from CBC News.

I know our President wants to wage war on Autism with the Combat Autism Act in the United States, But At least I can sit here and poke at our president's war on Autism by painting me an "enemy combatant." But, In Canada, Their Supreme Court refuses to hear an appeal to Autism Funding because [quote] The court, in this and a couple of other rulings, clearly suggested that decisions on social-policy spending belong in the hands of the legislatures, not the courts. [/quote] Parents at Ontario felt shocked but not surprised at the ruling. I can understand the bicameral process of passing laws, but I know this doesn't signal hope for families struggling to make ends meet with the rising costs of Autism.

Nothing I can express would ever change that. Action usually speaks louder than words so I would rather have you reply to the Canadian Parliament and voice your take on supporting Autism Funding in Canada. Your petition and action to support Families in Canada and South Carolina will help the funding and the power they need for their kids to go through autistic treatments that don't involve chelation as the answer.

Autism is a Gift. And at Canada, Organizations reflecting that gift I can think of are The Autism Acceptance Project and Autism Ontario.

Whether you are at Canada or not, please help support their National Autism Policy that will support autistic families of all provinces.

The National Strategy of Autism at Canada would cover lifelong services and support for people with Autism and burdening income taxes for families who have to cope with a child in the Autism Spectrum.

If Art Eggleton supports the National Autism Strategy of Canada, I'm hoping if you live at a different province, you can convince your senator to support the National Autism Strategy. Hopefully, It can emulate to the likes of that of the States like the State of California's Lanterman Act.

There's always hope.

- Al

4/9/07

Autism Fundraising - A Noble Experiment

What made me think about what I'd like to give back is based on how lucky I could have been as a kid. My mother was watching Oprah's special on Autism last Thursday and she was in tears given what these parents had to sacrifice and fight for their children. It brought her back the memories she had to go through with my autism when I was first diagnosed at age three and a half to four from the UCLA Medical Center. My mom tells me she prayed everyday for me as a kid while trying to help me seek developmental treatment with special education courses from Kindergarten to fifth grade and the weekend assistance at the Jay Nolan Center and the Harbor Regional Center.

I have been very fortunate with their help and assistance and it has helped me overcome my autism at some points. However, I'm still having trouble expressing my words verbally in front of important people, the boss, or even the chairman. I don't know how to convey my point well and it's something I'm still working on.

In April, only in Los Angeles, I'm hoping with the help of my friends and family to start a fundraising campaign before my 5k Autism Walk on April 28th. This is my very first time fundraising for the people I relate with for Autism Awareness since I was a child with my kindergarten teacher at the "Save Autistic Children" Telethon back in the mid 80s.

This is my start and it's going to be a work in progress from now til this month on my Donation website | http://www.walknow.org/07losangeles/al. I marked my donation goal at $500, but I want to raise as much as $5,000 before the walk.

Today, I've recieved some pledge agreements from my Chief Operating Officer at work. I also emailed my pledge to my friends from my fantasy baseball league. I'm also hoping to create more autism events later this week and next week. I'm very fortunate to have friends who are also willing to help out and donate as well. When I passed out my donation pledge copies at Caroline's Easter-hipster Housewarming party last night, it was chill and my reception there was great when discussing about how I had to live with autism.

If April in Los Angeles proves to be a good success, I'm hoping or aiming for the same at San Francisco with a team before the June 9th Walk.

- Al Porotesano